Meet Annatjie Nel, a 49-year-old from the North Coast of KZN, whose journey of love and sacrifice has touched many. In May 2024, Annatjie donated a kidney to her youngest daughter, who, like her sister, battles a rare genetic condition leading to kidney failure. Annatjie’s oldest daughter had already received a kidney from her father in 2021. Through this journey, Annatjie has learned the importance of correct information about organ donation and sees it as a profound privilege. Just a few months post-surgery, she is healing and cherishing every moment of this life-changing experience.
1. Which organ did you donate, and in what year?
I donated a kidney to my daughter in May 2024.
2. How long was your recipient on the waiting list for an organ?
She was accepted onto the deceased donor waiting list in April 2024.
3. What made you decide to donate?
Both our daughters have a rare genetic condition that results in kidney failure. My oldest daughter received a kidney from my husband (her father) in 2021. We knew our youngest would eventually develop kidney failure and the decision to be evaluated to be a donor for one of my girls was made when we first learned of their diagnosis in 2019.
4. Describe the emotions experienced when you were told that you are a suitable donor?
Overwhelming gratitude and joy!
5. What is life like now, after donating an organ?
At 3 weeks post-transplant, the operation site was still a bit tender. But physically I am getting better daily. Emotionally I am so grateful for the privilege to have helped my daughter.
6. What advice would you give people considering being a living donor?
Direct your questions to professionals. There are a lot of misinformation being spread about organ donation. Rather get the facts from the people that are trained to give the best information. Other than that – don’t hesitate to help if you can. It is an amazing privilege.
7. Why do you think there is a shortage of donors in South Africa?
Misinformation and lack of knowledge.
8. Has the idea of an altruistic donor become an outdated expectation in a modern society?
Sadly, from our experience, most people don’t seriously consider donation (live or deceased) unless organ failure happens to someone close to you.
9. What is the biggest stigma/myth you have heard about organ donation?
A while ago, while we were still in busy with the donor work-up, a family member told me she ran into a friend who also has kidney failure – the friend told our family member she cannot get a transplant as she was told getting a live donation from a relative or friend is considered ‘organ trafficking’ and illegal. I was horrified.
10. If you could describe donation in one word, what would it be?
A privilege.
11. Are there any reason NOT to be an organ donor?
There are various health related issues that would unfortunately disqualify you as a living donor. The work-up is quite extensive. But almost every one can donate tissue as a deceased donor.
12. If you could be any organ, what organ would you be and why?
The liver – it regenerates itself 😊