Tell your community

Because the most important part of organ and tissue donation, is conversation.

 

Life is the best gift you can give.

Our goal is to help educate people about organ and tissue donation in South Africa.

 

Tell your friends, tell your family, make it known.

Because we believe the most important part of organ and tissue donation, is conversation.

 

One conversation can save up to 8 lives.

Only 0,2% of South Africans are registered organ donors. But even then, your wishes might not be fulfilled. We want to end the waiting list by starting the conversation that matters most.

REFERRALS

If you’re a medical professional and want to refer a potential organ donor please call your local Transplant Coordinator.

Find the contact list HERE

ABOUT US

TELL (Transplant Education for Living Legacies) was created in 2018 with heart for hearts (and other organs). Two of the three founders and directors are lung transplant recipients, which not only gave them a second chance at life, but also put them in the unique position to make a difference in the transplant community.

Through years of collective experience in the field, we have identified various hurdles to organ transplantation in South Africa. The issues range from legal, to social, to stigmas and stereotypes. It is our mission to solve as many of these problems as possible, so that we can end the waiting list, together.

Because the most important part of organ and tissue donation, is conversation.

 

You can donate your organs one day when you pass away, but if you’re really keen to make a difference while you’re still alive, please consider donating financially to TELL.

We are a registered Non Profit Organisation (#219-134NPO) and a Public Benefit Organisation (930069136). Donations are therefore tax deductible. Donations will go towards campaigns to educate medical personnel and the public at large.

You can donate via electronic fund transfer.

Bank details
Name: Transplant Education for Living Legacies NPO
Bank: First National Bank (FNB)
Account type: Cheque
Account no: 62818725775
Branch code: 250655
Swift code: FIRNZAJJ

MEET THE TEAM

Stella de Kock

Managing Director

Stella was diagnosed with End Stage Renal Failure in 2011 and has been on hemo-dialysis since then. She has been on the waiting list for a kidney since 2012 and have decided to apply her skills and experience at TELL to raise awareness about organ and tissue donation.

Alice Vosloo

Financial Director

Alice was born with Cystic Fibrosis, and had a double lung transplant in 2008 at the age of 23, and then again in 2017 at the age of 33. She is the first person in SA to survive two bi-lateral lung transplants, and has participated in three World Transplant Games.

Fawn Kruger

Marketing Director

Fawn was born with Cystic Fibrosis, a chronic illness that destroyed her lungs and made it necessary for her to have a double lung transplant in 2013. After she recovered, she began her career in digital marketing and opened her own digital agency.

Coreen Walstra

Project Manager

Coreen was diagnosed with Auto Immune Hepatitis in 1990 and has lived with it her whole life. She was listed on the liver transplant list in September 2019. She works full time at a school in Edenvale as the Head Coach of Rowing and as a teacher.

Bonnie Venter

Legal Advisor

Bonnie is currently a PhD candidate and Senior Associate Teacher in Medical Law at the University of Bristol Law School, having received a University of Bristol PhD Studentship. She completed her LL.B degree at NWU and her LL.M in 2012.

Zane

The Zunicorn

Zane was born different and is a special unicorn that needed an operation. One of his parts was no longer working and a spare part was donated to him from a zebra. Zane now spends his days telling kids how important it is to SHARE THEIR SPARE and how being born different is ok. We found that by using Zane’s story, children understand organ and tissue donation and don’t find the concept frightening.

THE DONATION PROCESS

1. IDENTIFY
First a patient is identified as a potential donor.

2. REFER
Next, the donor is referred to a transplant coordinator.

3. CONSENT
The transplant coordinator is required to obtain consent from the family to retrieve the organs.

4. TRANSPLANT
Once consent is received, the transplant procedure can take place.

TRANSPLANT STORIES

Moran Kloes

| Transplant Stories | No Comments
We start Organ Donor Awareness Month by featuring the story of Morgan Kloes, who donated part of his liver to Coreen. Morgan is 33 and spend the majority of the…

Prenola Govender

| Transplant Stories | No Comments
As a girl of 14, Prenola Govender received a liver transplant, she tells her story in our #TransplantTuesday feature. Prenola is now 23 years old and lives in the beautiful…

Gregory Serradinho

| Transplant Stories | No Comments
Greg Serradinho, 34 years old from sunny Polokwane (Limpopo) tells his story of receiving a liver transplant. 1. Which organ did you receive, and in what year? I had a…

Lisa Smorenburg

| Transplant Stories | No Comments
We've told the stories of recipients, living donors and people on the waiting list, but this is the first time we are featuring a story from the donor's family. Lisa…

Muhammed Bhamjee

| Transplant Stories | No Comments
Muhammed Bhamjee gives a candid portrayal of what life is like on dialysis for a young man, he is 18 years old from Johannesburg South. Read his story on our…

Stoffel de Bruin

| Transplant Stories | No Comments
This #TransplantTuesday, we feature the story of Stoffel de Bruin, 57, living in Worcester, Western Cape. 1. Which organ did you receive, and in what year? I received a kidney…

Marika Ferreira

| Transplant Stories | No Comments
World Kidney Day celebrated around the globe on Thursday, 10 March, highlights the importance of looking after your kidneys and the impact of Chronic Kidney Disease. Marika Ferreira, 59 years…

Mally Marais

| Transplant Stories | No Comments
We start the New Year with a story from Mally Marais, 47 from Breede Rivier (WC), she donated a kidney to her sister-in-law. Read Mally’s story. 1. Which organ/tissue did…

FACTS AND FAQ’S

Can I donate organs while I’m still alive?

Yes! In South Africa it is possible (in specific cases) to donate a kidney, or a part of your liver, to a person in need should you be a blood group and tissue type match.

How do I become an organ donor?

Firstly, you can register with the Organ Donor Foundation, however the law in South Africa states that you need to make your intentions to donate known by either specifying it in your will, or in a legal  document, or by making it known with at least 2 witnesses present. It is important to note that hospitals tend to follow the practise where family is consulted concerning a person’s final wishes. This makes it even more important for you to tell your tribe, tell your team and make it known that you want to be a donor.

How long do you wait for an organ when you’re on the list?

Without enough organ donors, many people awaiting their second  chance at life remain on the list for years. Even worse, a lot of people on  the list end up dying due to a lack of donors.

How many people are currently awaiting organs?

There is no conclusive list of the number of patients currently awaiting a life saving organ transplant in South Africa. In 2016 the Organ Donor Foundation estimated that there are over 4300 people on the list, but experts believe that this figure is now far greater as the shortage of organs continues to grow.

How many people are registered as donors?

Currently, only 0,2% of South Africans are registered organ donors. But even so, their wishes may not get fulfilled. Which is why we encourage people to talk to their family and loved ones, to make sure you make it known.

Is there financial compensation for being a donor?

Being an organ/tissue donor is a selfless act which saves and improves the lives of countless grateful recipients. No financial compensation is received, and trading or selling organs and tissue is illegal. There is also no cost involved in becoming a donor, and also no further medical expenses are incurred by the family once brain stem death is diagnosed and the family has given consent for donation.

What can we do to help end the waiting list?

The most important part of organ and tissue donation, is conversation. The only way we can end the waiting list is for people to make it known that they intend to donate. Have the conversation with your family, your friends and even with your family doctor. The more people know, the easier it will be when the time comes.

Who can be an organ/tissue donor? Is there an age limit?

No! Any person can be a possible organ and tissue donor. All tests to see if you are eligible to be a donor are done at the time of your death, once your family has given consent for your organs to be donated. There is no age limit, because there is no age limit to people who need organs!

#MAKEITKNOWN

Only 0.2% of South Africans have registered as organ donors. But even then, there’s no guarantee that they will be able to make the difference they intended to. Because while becoming an organ donor is the start of an extraordinary commitment, it only happens when you have the necessary conversations with your friends and family to make your wishes known.

They are the ones who make the final decision, and it won’t be an easy one. Be brave enough to start the conversation that matters most. Tell them. In person, on social media, via whatsapp, however you choose. As long as you make it known. Because the most important part of organ donation is conversation.
Why quotation marks? Because they’re more than a brandmark, they’re the start of the most important conversation you’ll ever have.

Why not #MakeItKnown by getting a tattoo of the TELL quotation marks at one of our participating tattoo studios. Some of the studios are offering the tattoo for free while others are charging R100-R300 to cover their costs.

Not everyone wants a tattoo though, so we encourage everyone to get involved and find creative ways to #makeitknown. Have the quotation marks shaved into your hair, painted on your nails, sewed onto a shirt… As long as you #makeitknown and share it with us and the world.

Inkd Obsession
Alberton
082 837 0143

The Goth Spot
Joburg
083 269 0857

Skingraphix Tattoos
Kempton Park
079 982 1238

Heartfelt Ink 
Kempton Park
076 226 5216

Wyld At Heart Tattoo and Piercing cc.
Centurion
079 873 1937

Tattoo Black 786
Centurion
076 604 0828

Kyles Tattoo Studio
Pretoria
079 119 4320

Tattoo Tony Creations
Pretoria
012 753 8156

The Break Room Tattoo Lounge
Pretoria
071 890 8329

InkGenix
Springs
082 680 1595

Eternal Addiction Tattoos
Emalahleni (MP)
071 375 6391

Bunnycorpse Tattoos
Middelburg (MP)
081 041 3471

Step up tattoo piercing and permanent make up studio
Kloof, Durban
072 117 7553

Red Web Tattoo Studio
Durban North
082 570 8463

Fine Line Tattoo & Piercing
Durban North
087 700 2695

Ink It Tattoos
Durban
081 414 3941

Galway Ink Tattoo & Body Piercing Parlour
Gqeberha
076 825 9108

Candy Ink Tattoos
East London
084 375 5368

Black Dog Tattooing
Sedgefield (WC)
078 484 8479

Vermac Tattoos
Clarens
083 510 4906

Beauty & The Beast Tattoo Studio
Sterkrivier (Limpopo)
079 590 4162

Inkgenix Tattoo Studio
Philippines
+63 927 851 5395

TELL YOUR COMMUNITY

Thank you for joining the conversation about organ and tissue donation.

Have you told your family about your wishes to become an organ and tissue donor?

If you have registered as an organ donor that’s a great first step! However, hospitals follow the practice where the family is consulted concerning a person’s final wishes. This makes it even more important for you to tell your loved ones and make it known that you want to be a donor.

I’ve told my family, now what?

Great, you’ve told your family – thank you for sharing such an important decision so that you may save 8 lives and change up to 50 lives one day!
Now we’re asking you to take it a step further and TELL YOUR COMMUNITY.

We’ve created some downloadable posters that you can print out and laminate or simply share on social media.

Ask your doctors rooms, your gym, your church, your work, your hair salon or even your local grocery store if you can stick up a poster and help us educate South Africans about the importance of organ and tissue donation.

Please send us a pic of your poster displayed in your chosen community centre – we’d love to see and share it on social media!

DOWNLOAD POSTERS (ENGLISH)


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DOWNLOAD POSTERS (AFRIKAANS)


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DOWNLOAD POSTERS (SOTHO)


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DOWNLOAD POSTERS (TSONGA)


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DOWNLOAD POSTERS (VENDA)


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DOWNLOAD POSTERS (XHOSA)


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DOWNLOAD POSTERS (ZULU)


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