Life is the best gift you can give.

Our goal is to help educate people about organ and tissue donation in South Africa.

 

Tell your friends, tell your family, make it known.

Because we believe the most important part of organ and tissue donation, is conversation.

 

One conversation can save up to 8 lives.

Only 0,2% of South Africans are registered organ donors. But even then, your wishes might not be fulfilled. We want to end the waiting list by starting the conversation that matters most.

ABOUT US

TELL (Transplant Education for Living Legacies) was created in 2018 with heart for hearts (and other organs). Two of the three founders and directors are lung transplant recipients, which not only gave them a second chance at life, but also put them in the unique position to make a difference in the transplant community.

Through years of collective experience in the field, we have identified various hurdles to organ transplantation in South Africa. The issues range from legal, to social, to stigmas and stereotypes. It is our mission to solve as many of these problems as possible, so that we can end the waiting list, together.

Because the most important part of organ and tissue donation, is conversation.

MEET THE TEAM

Alice Vogt

Managing Director

Alice was born with Cystic Fibrosis, and had a double lung transplant in 2008 at the age of 23, and then again in 2017 at the age of 33. She is the first person in SA to survive two bi-lateral lung transplants, and has participated in three World Transplant Games.

Fawn Rogers

Marketing Director

Fawn was born with Cystic Fibrosis, a chronic illness that destroyed her lungs and made it necessary for her to have a double lung transplant in 2013. After she recovered, she began her career in digital marketing and opened her own digital agency.

Bonnie Venter

Director - Legal Affairs

Bonnie completed her LL.B degree at NWU and her LL.M in 2012. She was admitted as an Advocate of the High Court of South Africa in 2012 and currently holds the position of Health Law Lecturer at the Faculty of Health Sciences at the University of Witwatersrand.

THE DONATION PROCESS

1. IDENTIFY
First a patient is identified as a potential donor.

2. REFER
First a patient is identified as a potential donor.

3. CONSENT
First a patient is identified as a potential donor.

4. TRANSPLANT
First a patient is identified as a potential donor.

TRANSPLANT STORIES

Marilyn Rampersad

| Transplant Stories | No Comments
Date: 5 August 2020 Marilyn Rampersad, aged 32 from Cape Town, is featured in today's #WaitingWednesday post. 1. When were you diagnosed with organ failure and which organ are you…

Natalie Hinton

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Today we're featuring 29 year old Natalie Hinton from Edenvale in our weekly #WaitingWednesday post. 1. When were you diagnosed with organ failure and which organ are you waiting for?…

Coreen Walstra

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We're featuring 30 year old Coreen Walstra from Boksburg in today's #WaitingWednesday post. 1. When were you diagnosed with organ failure and which organ are you waiting for? I was…

Sammy Nandlall

| Transplant Stories | No Comments
We feature Sammy Nandlall from Alberton in today's #WaitingWednesday post. 1. When were you diagnosed with organ failure and which organ are you waiting for? 15 years ago, I was…

Kayl Symons

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A new month marks the start of a new series of interviews, with patients currently on the waiting list for organ transplants. While the whole world is wrapped up in…

Amesh Patel

| Transplant Stories | No Comments
Today we feature Amesh Patel from Johannesburg! He has definitely had the most interesting "call for transplant" we've seen thusfar! 1. Which organ/tissue did you receive, and in what year?…

Esendhri Moodley

| Transplant Stories | No Comments
1. Which organ/tissue did you receive, and in what year? Kidney in 2020 2. How long were you on the waiting list for your organ? Two years 3. What was…

Rose-Marie Human

| Transplant Stories | No Comments
Rose-Marie Human from Centurion has lived with her donated kidney for 32 years! What an inspiring journey! 1. Which organ/tissue did you receive, and in what year? Kidney, 1988. 2.…

Tanya Bothma

| Transplant Stories | One Comment
Tanya Bothma was the first person to receive a bi-lateral lung transplant at Groote Schuur hospital! This also marked the start of patients without medical aid now being able to…

Milase Mzamo

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Milase has not had an easy life, however she has not let her illness get her down, and after a kidney transplant, is finally living a healthy life. She shared…

Duran Thomas

| Transplant Stories | No Comments
Duran Thomas from Worchester in the Western Cape was blessed with a new kidney at the beginning of last year. His mom, Michelle Thomas, shares his journey with us. 1.…

Jordan Barber

| Transplant Stories | No Comments
We interviewed Jordan, a 25 year old from Bloemfontein about his kidney transplant. 1. Which organ/tissue did you receive, and in what year? Kidney- February 2018 2. How long were…

Michaela Williams

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We chatted to the mother of 10 year old Michaela Williams, Melauri Laurens, from Vanderbijlpark about her daughter's kidney transplant. 1. Which organ/tissue did your child receive, and in what…

Chi-Nelri Smith

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Today we're featuring the story of a brave little 3 year old girl from Benoni, Chi-Nelri. Thanks to the selflessness of a living donor, she is alive today. 1. Which…

Stella de Kock

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We are excited to introduce our new Project Manager, Stella de Kock, from Faerie Glen in Pretoria. We are super happy that our team is growing! Stella is also currently…

Mia Snyman

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Today we share the story of Mia Snyman from Worcester. Mia is a medical Dr AND a kidney recipient, so she knows more about transplantation than most, being both a…

Mimo Makgosi

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Mimo is a dynamic young woman who received a liver transplant in 2013. She is so full of life and such a great example of what transplant can do. We've…

Keneilwe Mogale

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Organ Donation is a conversation, and we want to #TellYourStory. This week we feature the story of 34 year old Keneilwe Mogale from Soweto in Gauteng. 1. Which organ did…

Ray Hartle

| Transplant Stories | No Comments
Organ Donation is a conversation, and we want to #TellYourStory. This week we feature the story of Ray Hartle, a journalist from the Eastern Cape. 1. Which organ/tissue did you…

Lisa du Plessis

| Transplant Stories | No Comments
Organ Donation is a conversation, and we want to #TellYourStory. This week we feature the story of Lisa Du Plessis from Cape Town. Lisa is a swimming star, and has…

FACTS AND FAQ’S

Can I donate organs while I’m still alive?

Yes! In South Africa it is possible (in specific cases) to donate a kidney, or a part of your liver, to a person in need should you be a blood group and tissue type match.

How do I become an organ donor?

Firstly, you can register with the Organ Donor Foundation, however the law in South Africa states that you need to make your intentions to donate known by either specifying it in your will, or in a legal  document, or by making it known with at least 2 witnesses present. It is important to note that hospitals tend to follow the practise where family is consulted concerning a person’s final wishes. This makes it even more important for you to tell your tribe, tell your team and make it known that you want to be a donor.

How long do you wait for an organ when you’re on the list?

Without enough organ donors, many people awaiting their second  chance at life remain on the list for years. Even worse, a lot of people on  the list end up dying due to a lack of donors.

How many people are currently awaiting organs?

There is no conclusive list of the number of patients currently awaiting a life saving organ transplant in South Africa. In 2016 the Organ Donor Foundation estimated that there are over 4300 people on the list, but experts believe that this figure is now far greater as the shortage of organs continues to grow.

How many people are registered as donors?

Currently, only 0,2% of South Africans are registered organ donors. But even so, their wishes may not get fulfilled. Which is why we encourage people to talk to their family and loved ones, to make sure you make it known.

Is there financial compensation for being a donor?

Being an organ/tissue donor is a selfless act which saves and improves the lives of countless grateful recipients. No financial compensation is received, and trading or selling organs and tissue is illegal. There is also no cost involved in becoming a donor, and also no further medical expenses are incurred by the family once brain stem death is diagnosed and the family has given consent for donation.

What can we do to help end the waiting list?

The most important part of organ and tissue donation, is conversation. The only way we can end the waiting list is for people to make it known that they intend to donate. Have the conversation with your family, your friends and even with your family doctor. The more people know, the easier it will be when the time comes.

Who can be an organ/tissue donor? Is there an age limit?

No! Any person can be a possible organ and tissue donor. All tests to see if you are eligible to be a donor are done at the time of your death, once your family has given consent for your organs to be donated. There is no age limit, because there is no age limit to people who need organs!

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